Saturday, December 29, 2012

Life's A Twitch First Story

Hey everyone!

16 year old Jeremy Davis sent in our first and only so far story! Please share more to lifesatwitch.emma@gmail.com!

My story is that I woke up one morning quite literally and started ticcing and shouting obscenities like the " f " and the " N " word and it went on for about a month they started in February of 2012 and I was diagnosed with a tic disorder one month later on march 14 2012 that was 10 months ago. I've been on clonidine and a medicine called Kapvay which is basically the same thing. I did go to a neurologist which didnt help because he didnt tell me anything that I didn't already know. So im still on the same medication and dealing with my some what annoying twitches and shouts.

Thank you, Jeremy! Your story will be on YouTube very soon!

Love

Emma <3

Thursday, December 6, 2012

The Death Sentence

Hey everyone!

There has been a big problem I would like to address. I'm sure it hasn't just been happening in my school or even just my state. The problem is this not so new but now very popular saying. Kids say it jokingly all the time nowadays and they don't understand how it can affect people. The saying? "Go kill yourself." Oh, yes. Unbelievable, right? If you answered no, then listen to this. Kids may be saying it in a "joking" tone, but you'd be incredibly surprised by the amount of people who consider it when you tell them to kill themselves. I know people who have attempted suicide, and it's no joke. It's not funny. I cringe everytime I hear this "joke" in the hallways. Also, there's the saying kids will just say like it's no big deal all the time. "Kill myself" or just "KMS".
Dropped my pencil? Kill myself.
Wrote that word down wrong? KMS!
Nothing good in the cafeteria? Ugh, kill my freaking self.
Someone took my seat? LOL, KM freaking S!
Well, I'm not "LOL'ing". Suicide isn't a joke. Maybe you think I'm overreacting, and if you do, come back and read this after you've felt suicidal and depressed, had two or more friends and a family member attempt suicide, then had to live with it feeling like it was your fault. Yeah, read this after that if you think I'm freaking overreacting. Because I'm not overreacting. People from my school may read this and think "What a freak, she's so dramatic!" Except I'm not being dramatic, I'm being mature. Yeah, sue me for being more mature than all of you people telling others to kill themselves. Not even am I just being mature, I'm being freaking humane. I thought it was morally wrong to tell someone to kill themselves, and now it's just being tossed around like a hot potato? I thought it was just something all decent human beings knew not to do.
When I hear someone say something like that to someone else, I normally tell them, "That's not funny, stop." But after a while, they say it so much that you can't tell every single person to stop. They don't listen, anyway. If someone says it to me, I either say, "That's not cool!" or "Okay". What if you said that to someone who was actually suicidal, and after you told them that, they went home and killed themselves? How would you feel? It's not even just about you, it's about them. You basically told them to murder someone. Yeah, maybe that sounds weird to you and you're thinking it couldn't be true. Yes, maybe you're thinking, "They couldn't actually take me seriously". Oh, and some of you say it's okay of course because you say "JK" after you tell them to kill themselves. You know, go commit suicide, just kidding *giggle*! People say it so lightheartedly, when it's one of the meanest things you can tell someone. I don't get why people my age have to be so damn immature and not think before they speak one bit. It makes me so mad that they have the audacity to tell someone to take their own lives like it's a normal thing to say. A funny thing to say. It's not funny. It's inhumane. It's disgusting. It's WRONG.
I may be rambling, but this overwhelmingly disgusts me. The people that say it disgust me. In my entire life, I have never told someone to kill themselves. Not jokingly, not seriously. Never. And I never will.
It gives me haunting chills whenever I hear that phrase, or even when I read it. "Go kill yourself."
Yes, people have said it to me before. Mostly jokingly, but this one time in middle school it really affected me. He was still joking, but it hurt. It still hurts. He told me, "Why don't you do the world a favor and go kill yourself? Just go home and kill yourself. Do it." Those were his EXACT words. His very exact words. I don't remember what I said, but I know I must have been thinking, "You think I've never thought of that before? You think I've never wanted to die?"
Words can hurt. Yes, but I don't let them affect me, you may say. Hey, I don't anymore either. But these words are different. They can penetrate every wall you put up. Oh, you're too confident in yourself and you would never let those words get to you? Alright, well good for you, but not everyone can let those deadly words pass through one ear and out the other.
Kill yourself.
Those two words conjoined are a death sentence.

Thanks for reading.

Love
Emma<3

Tuesday, November 27, 2012

Life's A Twitch Share Your Story Project

Hi everyone!

I am so sorry that I have not been writing. I will soon be making a video for my YouTube channel, so check that out within the hour.

Anyway...

Have you ever been made fun of for something you cannot control? Have you ever been bullied beyond repair? Have you ever kept a secret down deep inside because you feel as though no one will ever care? Guess what? I care. I care so much and I love you all so much. I know what it's like to be bullied and made fun of for things out of my control. So here is an idea. "Life's A Twitch's Share Your Story Project". Please send me your story, but only if you are content with it being on the internet. You can be completely ANONYMOUS if you wish, or you can let me mention your name. Just email to lifesatwitch.emma@gmail.com your story. It can be as long or as short as you want. No maximum, no minimum. Just get everything off your chest. It helps you so much, and it helps others as well. Just for people to know that others out there are going through the same thing as them is really comforting. Plus, you can be kind of famous. (;
It doesn't have to be a Tourette's life story, or even a full life story. It can just be a short anecdote, or whatever you feel comfortable with. This is completely for your benefit, and you should be able to feel comfortable with whatever you say being on the internet. I will post your stories to my blog, and read them on my YouTube channel, lifesatwitchemma.
Go ahead. Get it off your chest.
You are loved no matter what.

Love
Emma <3

Monday, October 1, 2012

Staying Strong

Hi.

People tell me all the time, "Emma, you're so strong as you go through this."
Sometimes I agree with them. Yes, life is hard. But maybe they shouldn't just tell me this. They should tell everyone. Everyone struggles with something, whether it is Tourette's or not. I recently had to stay strong and help a friend out. I cannot go into detail, but it was really hard. It's so hard to stay strong and help someone when they don't even want the help. Even so, you know you have to help them. If you do not, and they succeed with whatever horrific notion, then you will feel guilty. It's not all about you though. It's about the other person. You need to stay strong for THEM. Not for you. Not so that you don't feel guilty for not doing enough if the notion does in fact happen. You do it because you love the other person. You do it for THEM. Stay strong for THEM. Fight for THEM. It's not about you. Life is not all about you. Yes, you have struggles too, but when something horrible is happening to someone you love, you take action. Yes, you have your own troubles, but if you love them,  you set your troubles aside for a while and help. You may think that your struggle is worse and you should work yours out before helping them, but who are you to judge whose problem is worse? Have you felt EXACTLY to the point what the other person has? Have you literally crept into their body and consumed their feelings? No. That's impossible, so you don't know how hard their struggle is. Yes, yours may be terrible, but you cannot compare and contrast two struggles.
Since I am a die-hard fan of the show Friends, which sadly ended after ten beautiful seasons, I currently watch Matthew Perry's new show, Go On. In Go On, Matthew plays Ryan King, a radio show host whose wife recently died. He at first reluctantly attends a support group for loss, but ends up enjoying it. In the first episode, he took over the class and made a huge competition about who had the most screwed up life. I didn't think this was fair, even though the people in the group seemed to enjoy it. If you tell someone, "I'm having a harder time than you," I will personally punch you in the face. You don't know all that they've been through, and even if you do, you still have not been in their shoes while they experienced it. So, watch your mouth. I know I say this a lot, but I really hate when people say, "You wouldn't understand." It makes me really mad. This may sound contradictory to my argument, but it is not. Even though the person may not understand EXACTLY what is going on with you, EVERYONE has a struggle. I promise you there is not a single perfect person currently on the face of this earth. I promise. You know that perfect, popular girl? Yeah, she's got something going on with her as well. By everyone, I mean EVERYONE. Don't undermine other human struggles. Maybe you have Diabetes and someone else has been having friend drama. So what? The other person is still going through a hard time. You know what they're going through. Not EXACTLY, but you know a struggle. Stay strong for your loved ones, because you never know when you may lose them. Never let your tight grasp on your relationship loosen, because you have to be strong. Fight for them. Fight with them.

Love,

Emma <3

Thursday, August 23, 2012

NJCTS Walk

Hi everyone!

As some of you may know, I do not only write for Life's A Twitch, but also NJCTS.
They are having an upcoming walk for Tourette Syndrome. It is in New Jersey, and I realize most of my readers come from North Carolina, but you can also donate money here:

http://www.active.com/donate/mendhamwalksforts12.

It is for a great cause, so please donate! Whether it is one dollar or one hundred, it can help make a change.

Saturday, August 11, 2012

Fighter

Hey everyone!

Fighter.
What does this word mean? What does it really mean? There is more than one definition. Fighter... as in  someone who partakes in a fight. Fighter... as in someone who fights every second of everyday in more than one way. I would like to believe I'm the second definition. Anyone with Tourette's is. Maybe not every second of the day, but a lot of things are really hard to do. Does this mean we can't do them? No. It means we fight to do them. We fight a part of ourselves. A part that is deeply engraved in our minds. A part we cannot control. Day by day, we fight this demon in our brains. We search for ways to make it stop controlling us. There is no way out, so we continue to fight. Fight for what we want to do. Those of us who have mental disorders or even those of us who have suffered terrible things in our lives or feel uncomfortable in our own homes are the best of the fighters. The second definition has the best fighters. Yes, it's hard, but we must be resilient, for this is our lives.
The hellish part of us can be heavenly at points. It makes us stronger. It makes us work harder. Most importantly, it makes us who we are. And no matter what you think about yourself, I'm telling you right now: who you are is great. You have been made greater by the thing you wish away the most. You have struggled with drastic situations and come out victorious. You are who you are today because of Tourette Syndrome. Because of Depression. Because of your home life. Because of whatever is troubling you. You think you haven't won? Put your hand over your heart. Do you feel that? A pulse? This means you have won. You are still alive and breathing. My mother always told me that God never gives you anything you cannot handle. You can do this. You're a fighter. You've made it through this far, you can make it through the rest of your life. Everyone's lives have purpose and meaning. Everything happens for a reason. I promise. What you may believe is your worst curse may be your best gift. Every situation, every memory, and every fight has made you who you are. It has all shaped you into the beautiful being you are that is walking this earth at this very moment. I promise your life has meaning and anywhere you look you can find fulfillment, as long as you seek it.
Even though what you have has made you who you are, it has only made you who you are because you have fought it. You have fought it everyday so that you can keep living. So that you can stay positive even though you feel sometimes or even most of the time that nothing goes right. There is always a reason to be alive. Always. For those of us with Tourette Syndrome, there is a part of our brain that we cannot seem to take control of. We keep our friends close, and our enemies closer. So close that they are living in our brains. But we must thank these enemies, for they have made us strong and beautiful beings. We may wish them away, but who would we be without them? Would we take more things for granted? If you ever feel like you must die to escape, and that the fight has been too hard, and you have been beaten to a pulp too many times, coming into the victory circle wounded and tired, look around you. Colors. Smiles. Laughs. Joy. Hugs. Kisses. Butterflies. Kindness. Beauty. Life. All of God's creations. All of the things you would miss out on if you took your own life. You may think that taking your life is the only way out, but you are a fighter. Remember that you are not the only one in the battle. And that you will always win the war. As long as you are alive, you are winning. Whoever is reading this right now; you are a winner. Everyone has their own battles, whether big or small. You are not alone. You are not the only one fighting. Keep living, because tomorrow is a new day. Someone very wise once said, "Tomorrow will be better, and if it is not, then it is not yet tomorrow."
There is always someone in the world who is meant to love you. There are multiple people who love you. Taking your life can be thought of as an act of selfishness. Do not take yourself from your loved ones. They love you. Love is louder than any word anyone has ever called you, and it is greater than any blow anyone has taken to you. Love takes up more of your brain than any disorder, and love can heal better than any doctor. Fight. Fight so that you can stay in love's warm embrace. You may feel at times that no one loves you, but if you fight those feelings away, which may be the one of the hardest challenges you will have to face, you will see that you are loved. By many people. Even if you do not know it. You may think that if you died no one would care. But they would. You may not even know the person that loves you, but their heart may be filled with you inside. If you cannot fight for yourself, then fight for this person. Fight because God wants you to. Fight because Jesus fought for you. I do not care whether you believe in God or not, because he is up there whether you like it or not, and he loves you so much. He loves you with a love like no one else's. You are his child, and he loves you. Forever.
If you still believe that no one loves you, then I'm telling you right now that I do. I love you. I do not care who you are or what you have done. I love you.
So many things in life could be going wrong, but you, my friend, are a fighter. Your life is valuable. Honestly, the second definition of a fighter is always much stronger than the other. Both definitions could be fighting for their lives, but in many aspects, it is much harder for the second definition people, which makes them stronger. Maybe not physically, but mentally and emotionally.
I am a fighter. I fight everyday. I fight my disorders, but even though they cannot be completely defeated, I fight for an extraordinary life. Not a normal one. Who would ever want a normal life? Not me.

I love you all from the bottom of my heart, and thank you so much for reading.

Love, Emma<3

P.S. Dedicated to one of my great friends, Haley.<3

Thursday, August 9, 2012

True Life

Hi Everyone!

Turns out summer has negatively affected how much I write. I have been trying to clear out room on my schedule to write.
I recently watched a show called True Life: Embarassing Medical Conditions. Tourette Syndrome was one of the two conditions featured on the show. The girl, Allyssa, was quite an inspiration. She has tics that are more life threatening than mine, including holding her breath, fainting, and choking herself. She takes life a day at a time, and she is quite an inspiration to me. She seemed completely fine with herself and her disorder. She was happy to have her friends laugh at her. I'm not sure why she enjoyed this, but she liked to make a joke of it. Sometimes, I enjoy a few lighthearted jokes with my very close friends, but not all the time. This girl can drive even with her fainting tic! I thought this was amazing.
I always think that I will surely get in a car crash if I get behind a steering wheel. With my rapid and intense blinking tic, I don't think I will ever be able to safely drive. I don't want to risk my life and the lives of the people on the road and in my vehicle. So, for now I stick to not driving. I could have taken Driver's Ed in March, but I decided against it.
Allyssa made me think that maybe I can drive, since her tics are more severe than mine and she drives quite easily. She says she just concentrates really hard on driving. I feel like I would have to have music playing in order to occupy my Tourette's part of the brain. Tourette's is the lack of production of a sufficient amount of dopamine and music increases dopamine, so I guess that is one of the reasons music helps. I always have to listen to music in order to do my homework each night.
If Allyssa ever happens to read this (small chance), I would like to thank her bunches for helping me believe in myself. If you have Tourettes, join in the community, look up our videos, and read our blogs. It's good to know you're not alone.

Lots of love!

Emma<3

Saturday, July 7, 2012

Caswell 2012

Hello everyone!

I understand most people do not read blogs, and that is part of the reason I have made a YouTube account, but I'm still going to keep up this blog.
This past week, I went to a camp called Caswell. I learned some amazing stories of strong young people, and I realized that my life is amazing. When I said this to my one friend, she told me, "Well, people still have struggles in their lives that can make it hard. It may sound like someone's life is harder, but everyone has their own struggles." I agree with this, but I'm glad I have a really great family to support me. Sure, I have some crazy family history, but who doesn't? I really appreciate the life I have been given, and I'm so glad that I can use it to tell people about my disorder. The one that has made me sad, mad, and depressed. The one that has made me stay up countless nights. The one that has gotten me made fun of. The one that has made me so uncomfortable in my own body. But most importantly, the one that has made me a fighter.
On the first day of camp, we were given a small notebook with group devotions and places for notes on them (It was a church camp). Everyday, I wrote a small topic to blog about on the back of one of the pages. Monday's topic was my back tic. I have to make it into an arch by bending it back, and after a while, it really hurts. Speaking of pain, today on the bus ride home, one of my fingers sent a shooting pain up and down it. I think this is because of my knuckle cracking and middle finger bending tics. I'm a bit scared I may get Arthritis one day. There is a high chance. Because of my tics, my knuckles are a bit bigger than most people's knuckles. My husband is going to have a hard time finding me a ring. Anyway, back to my back tic. Oh man, I just made a funny. BACK to my BACK tic? Oh, I'm hilarious.
When I arrived at Caswell, I was getting my bunk ready when I realized I had only brought sheets and my pillow pet. I had forgotten a blanket. My friend came over to me in distress when she realized she had forgotten her pillow. We problem solved, and ended up sleeping on the same bunk with my pillow and her blanket. I was glad we did that, since the next morning, all the people sleeping alone were discussing how they were woken up because of the cold air conditioner. I, on the other hand, was sweating I was so warm. It was a close fit on the bed, but it also provided me someone else's body heat. With this said, my back tic was also throwing a fit. I had to bend my back so many times Monday night, and it really hurt. Thankfully, my bunkmate knew about my Tourettes, so she didn't say anything. My back tic stopped overreacting after Tuesday night, since I became extremely deprived of sleep. I had been so tired, that when I hit the bed, I practically fell asleep right then and there. My youth pastor had kept us in church group devotions a bit too late each night, and we would get to our cabins past lights out time. This is the reason I just took a five hour nap upon arriving home.
On Tuesday, I decided to go to the beach with my friends. Caswell is located on the coast of North Carolina, so we could easily take a ten minute walk to the beach. This was not extremely peaceful in the sweltering heat, but the cool water was worth it. I made my way into the ocean, and that is when the strong compulsion waved across me. I couldn't help it. I needed to open my eyes under the water. It stung my eyes like bees. It took me a while to wipe my eyes and blink out the salt. I think this was a result of my Obsessive Compulsive Disorder, but I'm not exactly sure. I used to have life-threatening compulsions. As I have said before, I think my disorders hate me! Anyway, I used to have to lick knives and try to breathe underwater. This made dinner and a trip to the pool a lot harder than usual. My psychiatrist told my parents to lock up the sharp objects somewhere, so I wouldn't see them and feel the need to lick them. So, at every dinner for a long time, I did not get my own knife. I felt like my little brother. I loved going to the pool, so I do not remember how I made it through that really hard compulsion. The opening my eyes underwater one has also always been around. I used to not be able to take baths because I would have to open my eyes under the steaming hot water. Thankfully, this compulsion eased up on me and I can take countless bubble baths now whenever I want. Even so, my disorders hate me and want me to feel pain, so in the ocean, the compulsion was unbearable and I had to open my eyes under the water at least once each day I went to the beach.
On Wednesday, my friend and I had a long conversation with one of the chaperones, who was one of the kid's mothers that came on the trip. At the end of the conversation, she decided to pray for us, and that is when it happened. The shoulder touching. Being in Apex High School chorus, I have learned how to suppress my shrugging tic, since every Thursday we give each other massages to release tension in our muscles. I talked about the therapy that has never worked for me before in another post; where you do the opposite of your tic in order to make it go away. I did this during chorus, and also tried hard to do it during the prayer, but as I have said before, it does not work well for me, and the shrugging tic never has gone away. The movement opposite of it where I move my shoulders down has also become a tic too. It's really annoying, but it's not anything I cannot deal with.
I did not write anything down for Thursday and Friday, since my tics decided to give me a nice couple of days, and settled down a bit. I'm really glad I went to Caswell, and I highly recommend that camp. You can always come with Salem Baptist Church. It was a fun and inspiring camp, and I also learned so much about my friends. I loved it, and I can't wait for next year!

Thanks for reading. I appreciate it!

Emma<3

Wednesday, June 6, 2012

You have TOURETTE'S!?

Hey guys and gals!

Been a while, huh? Well, thankfully, school is over so that should either have a positive or negative effect on how much I write!
Today I wanted to talk about the reactions people have to Tourette's. If people have given you any strange, mean, or even funny responses when you told them that you have Tourette's, just comment on this blog post what they were! I will include them in a YouTube video about reactions to Tourette's.
My most annoying response that I always get would probably be the one that goes like, "Oh my gosh! That's so cool! I would definitely use that to my advantage and cuss in class a bunch!"
Now, you can't tell me that wouldn't annoy you too. Recently, I was telling someone who also had Tourette's about a few things going on with my TS, and they kept saying "That's weird." Really? That's weird? You have complex tics too! I don't understand how someone else who has the same condition as me would think what I was doing was... Weird! If I'm weird, you're weird too!
Sometimes, I try to look at myself from someone else's point of view. Honestly, if I knew nothing about Tourette's, and had just met myself, I would think I was extremely weird. But when someone else who has TS says what you do is weird, that's just kind of peculiar.
If you don't have Tourette's, your first impression of me depends on the kind of day I'm having with my tics. If it's a bad day, then yes, I understand why you think I'm weird. If you see some girl puffing up her cheeks and making high-pitched squeaking noises at you, you'd think she was weird too, unless you knew about Tourette's. That's one of the reasons I have this blog; to raise awareness so that people know about that girl who puffs up her cheeks and squeaks. So they know why she's doing it, what makes her do it, why she can't stop. I know just what it is like to be her, and trust me, it's not always fun.
On a happier note, HAPPY SUMMER! Everyone have a great one!(:

Thanks for reading.

Emma<3

Saturday, May 5, 2012

Definition of Normal

Hey Guys!

I was just wondering what everyone's definition of "normal" is. I personally think there is no such thing... I mean, you can say I'm not normal because I have Tourettes, but I could say you're not normal because you have brown eyes, and I have blue ones. No one is normal... Or maybe everyone is their own type of normal.

Dictionary.com describes normal as: conforming to the standard or the common type; usual; notabnormal; regular; natural.

It says "regular" and "natural",  and conforming to the "standard or the common type", and "usual". But what is usual? It's just a synonym. And what is standard, or common? Who gets to say what is normal? Maybe different things are normal in different environments, like what is normal in a specific clique at school, or a culture... But, what is normal overall? What is normal for ALL of the cliques and EVERY single culture? Apparently I'm not normal, because I have Tourettes, but doesn't everyone have a little something? Maybe I'm normal and you're not. Normal may speak as what the majority of the population does or thinks, but wouldn't that just be popular?


One of my former classmates asked me this. She must have thought my videos and blog were a joke or something. She says that she knows I'm not normal, but who is she to judge if I am normal or not? Who is she to say that I'm the weird one out? I do have Tourettes, and I'm not one of those cruel people who joke about disorders. She wasn't joking about my disorder, but the way that she said she knew I wasn't normal was a bit rude.


Also, I saw this in a book I was reading. People with Tourettes are not morons, and no one has the right to call someone a moron. I know everyone was taught not to in preschool, so why do people keep making fun of others? I'm not saying I'm perfect, and that I've never made a snide remark, but that barely ever happens, and if I'm calling you a bitch, then you really are a bitch. I just wonder if this author, Sara Shepard, ever stopped to think, "What if some of my readers had Tourettes? How would they react? Would they stop reading my books?" I didn't stop reading the book, because it was just too good to stop reading. All you have to do is brush off someone's comment, because if they are saying something to pull you down, that means they are already lower than you. That mean girl at school that is always bothering you? She's not as good as you if she has to pick on you to feel good about herself. Always keep that in mind,   and the next time she says something mean, just be nice back to her. Kill em' with kindness! And always be kind to everyone, for all people are going through their own struggles. No one is to judge whose struggles are worse, and whose are easier. No one is to say who is normal, and who is not normal. No one can bring you down, unless you let them.
Seriously, treat others the way you want to be treated. You never know what they could be going through. If you're having a hard time with bullies or people who are "normal" and classify you as "not normal", always remember, they could end up working at a Taco Bell one day because they are too rude to work high up in a business branch. This is a total exaggeration, but seriously think about it. That stereotypical popular dumb jock who pushes you around is probably going to have the same job he has now in high school  until retirement. Guys like those live in the good times and never grow up. Gosh, haven't you seen the movies?(;
And if I EVER see that someone has told another person to kill themselves, I will be furious. You never know how that person actually feels about themselves. I remember I went through a really rough time in the seventh grade where I was extremely depressed. I'm really glad no one told me to go kill myself, because when people tell others that, the reaction is usually not very positive. I mean, there was once when my friend's ex-boyfriend told me, "Go home and just kill yourself. Nobody loves you. Just kill yourself." And those words have always stuck in my mind. What I just wrote is an exact quote. He was joking, but I was going through a very rough time when he told me that. Of course, I didn't kill myself, since I'm obviously writing this. There's always at least one thing in someone's life that they have to live for. If you ever feel depressed, I'd be happy to lift you up. You can just email me at lifesatwitch.emma@gmail.com. I'm there for everyone and anyone.

Anyway, please take my words into consideration, and as always, thank you for reading.(:

Emma<3

Tuesday, May 1, 2012

It's A Hard Tic Time

Hey Everyone!

So, I'm really stressed right now because I have two big tests tomorrow. This stress results in ticcing. I can barely focus on this blog post. My anxiety is practically taking over my body. I was just trying to exercise, but I can't because I'm ticcing too much. I know some people with Tourettes say exercise helps them cope with tics, but I can't exercise at all while ticcing. It's not a distraction for me; it's an obstacle.
School has kept me really busy, and I have been stressing a little more than usual. I started up on a slightly new medicine a month or two ago called Abilify. It had helped me in the past, and thank God, it is helping me again! I used to take it, but then my dad got another job and the new insurance wouldn't cover it, so it was around $800 for about a two-month supply. I had to switch medicines, since my family could not afford this. Thankfully, my dad works at SAS now, which covers the cost of Abilify so that it isn't completely ridiculous.
It's getting kind of hard to type, so I think I am going to go make a video about how my tics are in a rough time.

Thanks for reading!

Emma<3

Tuesday, April 10, 2012

YouTube Videos!

Hey guys,

It's really important to me that you guys check these videos out. I would love to be requested for a partnership on YouTube, and I need a TON of views for that! So please tell your friends, and share this link!!!

http://www.youtube.com/user/lifesatwitchemma?feature=mhee

THANK YOU

Emma<3

Monday, April 9, 2012

Different, But The Same

Hey everyone!
So, right now I am uploading a video onto YouTube. It is a Tourettes Q&A. The video name is “Tourette Syndrome Q&A”, so look it up! Also, follow me on Twitter at @itslifesatwitch, and like “Life’s A Twitch” on Facebook!(:
I would like to stress the fact that people with Tourette Syndrome are still people too. I have a pretty much ordinary teenage life, except I have a few things about me that make me very different from the other kids. Even though I am very different, I am very same as them at the same time. It’s confusing, but it’s true. I have a disorder that is… let’s face it, pretty peculiar. It is a part of my life though, and I have good and accepting friends. I tic, unlike all the other kids I know, but I still hang out with friends, get boyfriends, and go to parties. Not wild parties… yet. I know that one day I am going to be the designated driver for my crazy best friend *Holly (*name changed). Even though I’m extremely anxious about driving, I’ve been encouraged that I’ll be able to do it, and maybe I can one day. I may have four different medicines prescribed to me, but I still go to sleepovers and have fun. I may stay up until the AM ticcing so hard that I get cramps in my muscles, but I still go out to places with my friends the next day. I may have extreme anxiety about driving, but I still take Holly’s golf cart out for a spin almost every weekend. I may go to a psychiatrist, but hey, who doesn’t these days? I may need things to be symmetrical, but I still wear cute dresses even if they cannot be one-shoulder dresses. I may stress out over school everyday, but I still get straight A’s. I might have gone to the emergency room for a tic that was non-stop for over 40 hours, but I’m still a pretty healthy person. I may have Tourettes, but Tourettes doesn’t have me.
In three years, I am going to college, just like most everyone else. In about ten years, I’m going to get married, just like everyone else. In around 12 years, I will have children, just like everyone else. I fully intend on having a normal life- with a few of my own fun twists of course! I’d love to be an actress in a TV show or a movie star, or even a singer. I’m going to get a job one day, just like the rest of a fraction of the United States population (A little economical humor, eh?). I am going to write novels and be a best-selling author. I am going to raise my daughter Temperence, and my son Cameron Sealy into amazing people. I will have a loving husband who will make me sandwiches. These things I also fully intend on happening. Yes, I do pathetically have my kids’ names planned out already. Anyway, I just wanted to outline the fact that even though I’m very different, I’m very much normal at the same time (Even though I’m a bit more fun than just plain old normal).

                                     Me                                        “Holly”
As always, thank you for reading.(:
Emma<3

Friday, March 16, 2012

Thank God for Valium

Hello All,

It really has been too long. I have to remember to post! Life has just been so busy, and I've been so stressed. There has been a lot on my plate.

So what are the highlights of my life lately?
Well, as you all know, I have my new prescription, Valium. I have had to use it about twice. Last Monday, in the middle of the night my leg muscle tightening tic got out of control. It was unbearable. It was one of those nights that I felt the need to crawl out of my skin, and my body was not my own. Do you know what that feels like? To not want to be awake. That's what I have to do sometimes. I have to knock myself out in order to stay somewhat sane. So, I took the Valium and it worked pretty well. The night was very choppy, though.
At first, when I started repetitively tightening my muscles- virtually unable to stop, I started letting out some screams because I couldn't bear it. My mother came to my aide and started to rub my back in order to calm me down. She started to fear that I may have been slipping into another 52-hour tic attack. I hadn't thought of it like that, but thankfully it was not that bad. My mom had gone downstairs to call my doctor and ask what we should do, so she made me wait in my room. I couldn't stay still, so I walked downstairs. I tried sitting down on the couch, but I couldn't do it. I paced around the downstairs while my mom left a message for my psychiatrist. Eventually, I ended up sitting down on the couch with my mom rubbing my back while the medicine started to kick in. Thankfully, I was able to get to sleep that night, but at a really late time. In result, I got to go to school late the next day. Yippee, a positive side!
Always try to find a positive side to everything. It helps a lot.
Last week was a bit of a rough week for my tics, but this week has gone averagely. Yes, that is a word. I didn't know until I typed it and there was no red, squiggly line under it.
Yesterday, I had to get a facial done at the Skin Institute. It's a spa-like dermatology center. I had to leave my former dermatology office because I didn't understand the doctor's accent... oh yeah, and the medicine they prescribed never helped, but I like to think that it was mostly because of the accent. Anyway, I had been anxious since during a facial you have to hold a bit still. I mean, they put needles in your face to extract nasty stuff! It's not like you can just move all over the place while they poke you with needles! Or so I thought. It actually went pretty smoothly. I was able to relax during the steam mask even though it basically suffocates you, and then when the lady was poking needles into me, I still furrowed my eyebrows together, and I was able to! She didn't object to it at all. Probably since people knit their eyebrows together because of the slight pain. Thank God the procedure went smoothly; I wasn't very worried about it, but that was because I had forgotten about it until yesterday.
Next week I go to Atlanta, Georgia with the rest of my chorus! It's going to be tons of fun; I just really hope my Tourettes doesn't act up. I don't want a night like I had last Monday, especially since my mom will not be with me in Georgia. I'm going to take my every night medicines, PLUS my Clonazepam and Valium! I tend to over pack a bit, but I never know if I might need both. Hey, it's better to accidentally bring too much than too little.

Thanks for reading!

Emma<3

Wednesday, February 22, 2012

Youth Ambassador

Hello Everyone!

I just finished calling and e-mailing my senators' and representative's offices about making appointments during my trip to DC in April with the TSA. Super exciting! ...And stressful. There is so much to do! I have to e-mail persistently, work on what exactly I'm going to say at the meeting, and try to get an excused educational absence from school for the days I will be gone! Okay, that doesn't sound like a lot... but I have Anxiety Disorder, so it is a lot to me.

My squeaking tic is really annoying me. I'm pretty sure it would annoy most anybody. I'm really glad that it has not disrupted class at all. I think I'm focused during class, which leads to less tics. Even taking this into account, my tics can still get bad during class. I'm surprised my squeaking tic has not been extremely persistent during class. Surprised... and grateful! Another tic that has been trying to get on my bad side is my leg muscle tensing tic. It works up a lot. Sometimes, I walk funny because of it. When I tense my legs, they lock up, so when I'm walking and ticcing, it looks strange... kind of like I'm not bending my legs while I walk. It looks pretty dorky, but I honestly don't care. I don't care what anyone thinks of me. Just what I think of myself.

I have a new prescription! My tics have been on the rise, so I am now going to take Valium when my tics get really bad. It's a muscle relaxer, so hopefully I will get some good sleep and tic less while on it. Let's hope for the best!

This is the last call for any questions about Tourette Syndrome that people want answered! You can email them to me at lifesatwitch.emma@gmail.com or comment on this post! I plan on shooting the video soon, and I already have some good questions that are going to be in the video.

Hey, I think TSA Youth Ambassador is going to look pretty good on my college applications!(;

Thanks for reading!!!

Emma<3

Wednesday, February 8, 2012

TSA Youth Ambassador Conference!

Hey Everyone,

I'm working on my paperwork for the Tourette Syndrome Youth Ambassador Conference!
I had to fill something out about Youth Ambassador Leadership Training.
I was just wondering if anyone else was going.
If you are, please tell me!

I'm extremely excited, and I will definitely blog about it once I am home. The conference is in April, so of course, I understand that is a little ways away from now, but I'm still super elated to be going!

On another note... Please check out the new documentary "Out of Our Control: The Chronicled Lives of Tourette's Syndrome"
I am in it, as well as many other teens and young adults who suffer from TS. Please check it out! It is on YouTube. The wonderful Ruthie Pershing made it, and her YouTube username is dispensingstarlight. So, please check that out! Also, check out her blog! It's called "A Little Bit Different: A Life with Tourette's Syndrome"

Thank you all!

Emma<3

Wednesday, February 1, 2012

Oh, Joyful Joyness . . .

Hello People,

Oh Joyful joy, happy, happy, joy, joy.

So, I've always had this tic that kind of comes and goes that has always scared me. I felt the need to scream so I pushed squeaks out of the back of my throat to mimic the feeling of screaming.
See, this tic would always come and go. Now it's staying with me.
I'm afraid if it keeps getting worse that I may disrupt class and even more questions will be thrown at me. I can nonchalantly disguise most of my tics... but a screaming tic? No way, Jose!
This tic has probably reached my top ten worst tics. I'd have to say it's almost number one. I mean, screaming? Really?
I only let myself squeak. It kind of scares me, because I've never had such a loud tic. It also annoys me because I can't just scream anywhere. I have such an overwhelming urge to scream! I can just squeak and it will pretty much satisfy my tic, because it feels like screaming.
You know how people say, "I'm so overwhelmed, I need to just scream into a pillow!"?
Well, I really do need to scream. Literally.
A little while ago, I was squeaking and my brother said, "Dad, is that Phin?"
Phin is the name of our dog.
My dad replied, "No, that's your sister."
And just now my brother though the sound I was making was my chair.
Sometimes I think it's funny, well... not funny... but unbelievable that people say, "Oh, I had the worst day ever today! I had a bad hair day and I got my period!"
That's not the worst day. Well, for some people, that is their worst day.
I pray for those kind of days.
Days where I won't have to tic anymore or stress out and become overwhelmed beyond compare. Where instead of not having total control of my body, my Tourettes is cured- and even if I get my period, have a bad hair day, and my boyfriend breaks up with me... That would still be the best day of my life. Not that I want to have ugly hair, bloody pants, and be forever alone... but if that all happened on the day that my Tourettes was cured, it would still be the best day of my life. I know that people have it way worse than me... trust me. I know that. At least I'm not starving or dying of Cancer. I thank God for that.
But, I don't do these things called "tics" for my own amusement.
I am not crazy.
I am not too different than everyone else.
I am a human being.
Not just a twitchy freak.
I have Tourettes.
But Tourettes does NOT have me.
Why do I blab on and on about Tourettes? Why do I have a blog about it? A YouTube channel for it? A Twitter for it? A Facebook page for it?
To raise awareness, so people know not to make fun of people with Tourettes. It's wrong. We're the same as everyone else; we just tic.
For so long I have dealt with people who don't understand Tourettes and make fun of it, but I've decided not to stand for that anymore. I've decided I'm going to make an impact.

The ones who are crazy enough to think they can change the world are the ones that do.

And hey, life is such a twitch! Even so, you gotta keep livin'. While I live with Tourettes, I might as well do something about it.

Thank you for reading, and please tell your friends about Life's A Twitch!

Also...

Follow @ItsLifesATwitch on Twitter

Subscribe to @lifesatwitchemma on YouTube

And Like "Life's A Twitch" on Facebook

Jeremiah 29:11 For I know the plans I have for you, declares the LORD, plans for welfare and not for evil, to give you a future and a hope.


You're all awesome!

Love,

Emma<3

Sunday, January 29, 2012

Smile, It Works(:

Hey Everyone!

Even though times may get rough, you have to realize that what doesn't kill you makes you stronger.(:

Just wanted to let yinz know I have a Twitter account all for Tourettes Awareness! It is @itslifesatwitch
Follow me and tell your friends!

Thank you,
Emma<3

Wednesday, January 11, 2012

New Year, New . . . Well, nothing . . .

Hey everyone!

Salutations!

Happy New Year!

Merry 2012!

Yeah... well, anyways... I just wanted to let you all know that I have an obsession with the show "Friends". Just putting that out there... It's my favorite show. *Happy sigh*.

I spent the new year with *Holly! And also three other days in a row with her. It was a ton of fun.
I realize this is my first post of the new year. 2012, baby! I don't know what to say about that... I mean, everyone posted on Facebook and tweeted on Twitter things like "New Year, New Me!" and "This is the new year, time to start things fresh(:". Honestly, the new year doesn't change anything. It's just another cycle around the sun. There aren't any huge mystic happenings when a new year comes around. People all want to start anew, but things are just the same. I'm not trying to be a Debbie Downer, but I spout the truth! I just thought the statuses were a bit silly.

I found a new quote and fell in love with it:

"Give thanks to those who did you wrong... for they unknowingly made you strong." - Unknown

This reminds me of all the times I have gotten made fun of. Many people have done me wrong, and unknowingly made me strong. Plus, this quote RHYMES. Cool beans!!
I can't help making these movements and performing these actions, so don't make it even harder for me. I mean, really? I just don't understand why people have the knack to put others down. Especially for things that they can't control. I'm not just talking about Tourettes. People get made fun of for other disorders that they can't control. It's wrong to make fun of people for these things.
I have finally reached the age where a lot of people just don't care about anything very much anymore. It doesn't really matter where you get your clothes from and how you do your makeup anymore, so people aren't as cold and shallow about those things. Thankfully, I don't have to worry about these things. I never really did worry about it anyway. Even so, I do worry about my Tourettes and other peoples' reactions to it. I know it doesn't matter what they think, but when I clap in silence or bend down in the middle of the hallway, people ask questions. It's pretty tiring having to explain the same thing over and over and over and over and over and over and over and over and over and over again.
What if someone tells other people that I'm a freak, and then no one else wants to even give me a chance at being friends with them?
Well, I do know the answer to that. The people who don't give me a chance wouldn't be good friends anyways.
I do feel a bit uncomfortable when I start coughing a lot and an adult asks me if I need water. I tell them that I don't, but I feel like I shouldn't keep coughing even though I need to. I mean, if I keep coughing, they'll keep on asking me if I need water. I usually end up being fine, though.
Keep calm and pray.

I went to see my psychiatrist yesterday, and I talked to her about how I happen to forget things a lot. I wanted to know if it was from one of the medicines I'm taking. It turns out that it's just from Tourettes. She explained to me that TS basically takes up a part of my brain and makes it so I can't control it. This apparently takes up a lot of "data usage" in my brain, so I don't have a lot of space left to remember small things like phone numbers or adresses. To show me my small data usage in action, she recited a phone number with a lot of patterned numbers in it. I could recite it back to her pretty easily. But when she told me a phone number that had no patterns or repeated numbers, and told me to repeat it back to her, I couldn't. Even though it was just a second later, I didn't remember the number at all. Then, she told me the number in fragments and had me repeat the fragments back to her.
For instance:

Her: 529
Me: 529
Her: 60
Me: 60
Her: 41
Me: 41
Her: Now the whole number.
Me: 5296041

It was a really cool exercise. I found a blind spot in my brain! There was also another new aspect of TS that I learned. I can't really focus on what I'm doing unless I have an extra sensory thing going on. I can't do my homework very well unless I have music playing. The music occupies the part of my brain that would normally be wandering off and making me want to do other things so that I can easily do my homework. She also said that a lot of kids with Tourettes may be cleaning their rooms and think "Hey, look, a game!" and go off and do something else. In my case, I may go "Hey, look, a pencil!" and pick it up and start banging it on things and make a random song. Oh, distractions, distractions.
So now I have to take a few vitamins to enhance my memory, which is fine with me.

Thank you for reading!

Emma<3