Showing posts with label emma. Show all posts
Showing posts with label emma. Show all posts

Saturday, November 12, 2011

Jellybeans Are Not My Favorite Food

Hey Ya'll!

So, if you haven't checked out my videos on YouTube yet, please do! I need some more people to post questions on my Life's A Twitch video, so I can do a Question & Answer episode! My YouTube username is lifesatwitchemma. Please subscribe!
Also, please like me on Facebook! There is now a page for Life's A Twitch!

Anyways, enough with the business. Let's talk about life.
Unfortunately, one of my family's dearest friends had a death in the family. Please pray for them. Their courageous, amazing son died of Brain Cancer on November 9th. He is now in God's embrace.
Last night, there was a nice get together with his family, Aunt Ronnie's family, and my family. We all had an enjoyable night and hung out for a long while.
I feel really bad talking about Tourettes, when I know that one of my friends just died of Cancer.
I'm going to somewhat paraphrase something Meredith Grey said on the most recent Grey's Anatomy.

When you describe a terrible day, you talk about when coffee was spilled on your shirt, a fight with your boss, or traffic. But, you never really describe a real terrible day.

It's terrible that their son had to die, but now he is not suffering, and he is in Heaven.
As I've said before, please pray for the family to get through this hard time.
And Thank God for your lives.
I know I will.
It's not the end of the world if your boyfriend breaks up with you, or you get in a fight with your bestfriend. Think about it. I hate when people think the world is ending just because of a very small, insignificant thing.
I even heard a girl in the locker room the other day say, "I hate this! This only happens to me!"
I could have punched her.
So, stop taking your life for granted. Please.
I'm not saying all of you do, but I would just like for people to think before they speak.

So, my story today...
Last night all the kids were going out to Jellybeans. My mom wanted to talk to Aunt Ronnie, Uncle Jermajesty, and all of her friends without me being there, so I went to Jellybeans with the kids. I was the oldest there; there were two middle schoolers, and three elementary schoolers going, including my brother. Oh yeah, and they were all guys.
And, by the way, Jellybeans is a rollerskating rink.
Ask me: Emma, can you rollerskate?
I will answer: No, my friends, I can not.
Well, I mean, I kind of can. Just not fast... or really looking like I know what I'm doing. At all.
Part of the reason I can't skate is because of my Tourettes.
See, my Tourettes hates me. It's out to get me. We aren't friends... No, no, no. Tourettes and I are not friends. Not even close.
Unfortunately, I have to keep my friends close and my enemies closer. Much, much closer. In my brain kind of closer.
Yeah, I'm not crazy, I'm talking about Tourettes.
Anyways, whenever I am doing something I really want to do- or want to try to do- my TS will get in the way.
Me: I want to rollerskate.
TS: Okay, here you go. Now, I want you to bend down, straighten your legs, point your toes. Oh, you're falling? Too bad. Suck it up. Now straighten, point, bend, flex.
While I was skating, I kept feeling the need to do the movements, but I tried to distract myself and think about other things. It was extremely uncomfortable skating around and not letting myself tic. I would go to the wall sometimes and let it out, but otherwise I was just skating on my not so merry way.
So, no more Jellybeans for me.
Plus, I almost had an anxiety attack last night. My friend was texting me and I couldn't make it somewhere that she wanted me to go, and she was talking about how I had to go and she was going to die if I couldn't. I was under a lot of pressure, and I got nauseous. I think some stomach acids burnt the back of my tongue. It wasn't very pleasant.
Hey, at least I got to make a wish on 11/11/11 at 11:11pm!
Yeah, I know. You're probably saying, "Shut up. Every freaking person is tweeting that and putting that as their statuses."
Hey, it only happens every millenium!

Thanks for reading!

Please remember to pray for my friends and check out my YouTube account!

Emma<3

Saturday, October 1, 2011

It's Been A While...

Hey!

Wow, It's been a while since I've last blogged... Honestly, there's been nothing much to blog about. I know, normally my life is so bloggable.
But, highschool has been great.
And, I've been thinking...
And thinking...
How to make a change.
But what you have to do is stop thinking and start doing. I'm planning a video about Tourettes, but I seemed to have misplaced my supplies... which is pretty stressful.
My parents have been looking at a new house, and I don't like change. It's an OCD thing. But, they said it's probably not going to happen.
I was babysitting *Bucket yesterday for *Aunt Ronnie, and we went on a walk. When I bent down, he bent down. Up, down. Up, down. He is such a cute little boy.
He asked me, "Emma, why do you have to bend down?"
I told him it was because of Tourettes, but I didn't feel like elaborating. He's three, so that's all the explanation he really needs. He kept bending down with me, which a lot of people do. My one friend used to say, "Drop it like it's hot!" everytime I bent down. Kids my age would ask if I wanted them to do it with me. Um, no... Why would I want you to do that? I know they just wanted to help me out and make it look normal, but... really? I don't expect you to drop it like it's hot with me all the time...
Anyways, that's life lately...

Thanks for reading!

Emma<3

Monday, September 12, 2011

Sing it!

Hey Yinz!

So, I just got back from a chorus meeting. It was a test grade, yada, yada.
When I got there, we had to meet in between two trailers and line up with our group (Alto, Second Soprano, First Soprano). I am a first soprano, so I lined up along with my group.
There has always been this one girl, *Lily (*name changed), who has always been strangely negative towards me and other people sometimes, but is a sophomore loved by a lot of the other chorus members, and tons of people think she's so cute. I never really thought much of her snappiness and putting people down.
One time, when the girl next to her lent me a pair of scissors, and when I was done with them, I offered them back, because I thought they belonged to her.
"Really? Pass them to the front! Is it that hard to pass scissors?" Lily exclaimed.
I always brushed off the things that she said.
They were stupid; she was stupid.
She even randomly went off insulting people and muttering remarks about them behind their backs. I just let it go. Sadly, I have no choice but to sit in front of her, since she is in my vocal group, and we all have assigned seats.
Tonight, we all lined up, and I kept bending down, because that's one of my tics.
The girl next to me said, "Why are you doing that?"
"Tourettes," I replied quickly.
Lily caught my attention, then twitched her head violently, and exclaimed, "Sh**! That's cool!" She laughed and went on, "Oh, sorry, I had to do that."
It wasn't a sincere sorry, just a joking around type of sorry... 
But, I know she doesn't understand. Goodness, how many times do I say that on here? Tons.
I've always thought about moments with mean girls in high school when I was younger; what I would say... what I would do... but, right then and there, in the moment, I was highly offended, yet had nothing to say.
People started asking, "Is that true?", "Do you have Tourettes?", "You have Tourettes?", "Really?"
I just nodded.
"So, do you cuss and slap people?" an upperclassman asked.
"No," I replied.
Tears were brimming in my eyes because of what Lily had said. I was surprised, since I hadn't been feeling any extreme emotions from her ignorant comment.
Strong, Emma, I thought, Just keep strong. You are strong.
I didn't let one tear leave their ducts. Strong, strong, strong. Just. Keep. Strong.
The rest of the night was alright, even though I got a bit anxious during the meeting, but it was all fine.
By the way, I just turned 14 on the first of September.(:


Brush it off, she's not worth it, move on.

Stand up for yourself, don't let them walk over you.

Remember, Just. Keep. Strong.


Love,
Emma<3

Did You Hear That?

So, I wrote this poem a little while ago...


Did You Hear That?

Did you hear that?
Loud as thunder
Stinging your ears
Driving you to tears
Do you hear that?
Scares you
Frightens you
Louder, Louder, Louder
More and more keep coming
Constant drumming
What’s that?
Smacking sounds
Harder and harder the objects slam
Echoing off the walls
Clap, clap!
Drives you crazy
Drives me crazy
Listen, can you hear that?
It’s the girl with Tourettes

Emma O'Connell


Monday, September 5, 2011

Labor Day!

Hi People!

So... a lot has gone on lately. High school has been great, and today is Labor Day.

I wrote a poem-type thing, but it is stored on my laptop, which I am not on right now, so I will post it some other time.

So... life.
High school, as I said, has been great. There is this one girl in Chorus that irks me though. She is a sophomore and everyone loves her, but she is very negative towards me. I just don't deal with that crap.
Last weekend, Hurricane Irene came. I was at home, about to leave for a football game which was later cancelled, when my best friend, *Holly (*name changed), invited me to her lake house. It's north of where I live, so I thought, "Hey, what the heck! I can just avoid the hurricane up there!" So, I kissed my family goodbye and went to her lake house.
Boy, was I wrong.
There was a ton of wind and rain pounding down on the earth with brutal force. Holly's mom screamed when a tree came down on the power lines in front of their house. And then we lost power. Her parents pulled out the generator, Thank God, so we got to watch the news, and then a movie.
There was one phone in the house that worked, because it was hooked up to the wall. My iPhone has AT&T, so I don't get service at the lake, and Holly's phone was dead. So, I used the wall phone to call my parents.
"Hey mom! How is it down there? We have lots of rain and wind and a tree fell down right in front of the house!"
"Oh, wow! Well, we haven't seen a drop of rain. It's sunny."
Of course.
But at least I got to make origami and play boardgames with Holly, like people used to do in the old times. Ha. Boardgames. More like Boredgames.
By the way, Twister is really hard to play when a puppy is running into you 24/7.
We still had a good time though, and on Monday we went back to school. Yes, I survived my first week of high school. My birthday was on Thursday, September 1st. I got some money, and my parents bought me "Sims 3" and some clothes. Also, they ordered me a new laptop battery, which I think is an essential, not a gift. You should be able to get a laptop battery whenever you need one. But I was grateful for everything I got.
This weekend, being Labor Day weekend, I went up to Lake Gaston, which is where Holly's lake house is located. But, I went up with my *Aunt Veronica, otherwise known as "Aunt Ronnie", her husband *Uncle Jermajesty, their kids, *Bucket and *Shania, *Sha-nay-nay (AKA Missy G) and her husband *Tim, plus their two kids *Kat and *Breezer. Of course my family came up too. (*names changed)
Shania and my brother, Sam, are really good friends. Shania is 7, and Sam is 8. Shania's little brother, Bucket, is 3. I think Kat is 11, and Breezer is 8.
Anyways, we were all having fun, and the parents were inside the house, while I was outside with the kids. Sha-nay-nay and her family hadn't gotten there yet, so it was just Aunt Ronnie's family and mine. Sam was wearing one of Bucket's life vests, and Bucket kept whining to me that he wanted it back or else he would sink in the water. I kept playing with my mom's camera, taking pictures of him and the other kids. Then, Bucket ran off while I was viewing the pictures. I heard a splash, then gurgled screams. It took me a second to realize what was going on, but then I sprinted towards the deck, threw my mom's camera on a chair, and jumped into the water. Bucket had been horrified and his bright orange shirt looked like a mushroom floating in the water. His head was almost under, so I grabbed him and swam towards the ladder, which isn't as easy as it sounds. Bucket isn't exactly a baby anymore. He didn't swallow any water, so I rushed him up to his parents. I didn't think he would jump in, since he had already acknowledged the fact he would sink.
Yeah, super life saver heroic person award goes to Emma! I know, I know. Thank you. I was just really glad Bucket was safe.
Ha, yeah, wanna make fun of the Tourettes kid now that she saved a life? That reminds me, I was thinking of doing a Tourettes Girl YouTube channel to show up the Tourettes Guy. I'd make a bunch of inspirational videos, and just some things that show that even though I have Tourettes, I'm pretty normal. Although, I don't like the word normal. I always say "Never strive for normal. Be better than normal."
Later, while on the dock, everyone was discussing sleeping arrangements, and Aunt Ronnie offered to sleep with me. The house was a bit cramped for twelve people.
I rejected the offer, since I didn't want to ruin her sleep. I clap a lot during the night, because that is one of my Tourettes prime times, so I just offered to sleep with Kat and Breezer on an air mattress. It ended up Breezer laying down on the couch, and Kat with me on the mattress. Whenever I would clap, Breezer would yell at me to stop. I told her I couldn't help it since I have Tourettes, and Kat said the same thing, but Breezer kept yelling at me.
Clap, clap, clap!
Irritated screams
Clap, clap, clap!
"Stop, you maniac!"
Clap, clap, clap!
"Stop, you crazy person!"
Clap, clap, clap!
"Stop, you weirdo!"
It eventually got to the point where Kat and I just ignored her whining.
I totally understand that she is only 8 and doesn't understand why I was clapping. I get it. Trust me, ever since I was five, I've come across hundreds of people who don't understand what I'm going through, and don't know how to deal with it.
I love watching TV with Holly, though. My OCD makes me ask all of these questions and she never gets mad. My parents, on the other hand, are extremely irritated by my question asking. I try really hard not to ask the questions, and sometimes I can actually hold it back and push it to the deep depths of my brain.
Anyways, the next day, I met up with Holly at Goat Island to go to her lake house. Goat Island got its name for a very literal reason. A bunch of goats inhabit it.
That night, I went to a party with Holly and her family. It was fun, but there was this twelve year old kid who was one of those non-understanders. This is why I must educate the population about Tourettes Syndrome.
We were playing football, and it hit my head, but he picked it up.
I'm not sure if I've gone over this yet, but whenever someone or something touches my head, chest, or wrist, I have to blow on whatever touched me. It's strange, I know. But, when I was younger it used to kind of be a game, which makes me wonder if I started it. If I triggered the OCD. I used to pretend that whatever touched those main arteries had my chi, which is the word for your natural energy. It's some Chinese thing. But, I would blow it up to God or something. It was strange. Maybe even then that was part of my OCD and I didn't know it at that point.
But, that's not the only time that has happened. When I was little, I also used to pretend that on one side of my mouth was a very rich family, and the other side was a very poor one, and I would even out how many bites I would take, but I would sometimes give more to the rich family, since they were rich and had a huge money vault, and if I gave all of it to the poor, then they wouldn't be poor. Sometimes, I'd give more to the poor family since they were struggling. I also would sometimes pretend there were two bright white molar towers, and every time I took a bite on one side, that side's tower would grow a bit. I kept making things equal. I'm sure I didn't give myself those parts of the OCD, but it's still a coincidence that those little games would turn into something that would affect me for the rest of my life.
Anyways, way off topic, Emma!
The twelve year old who stole the football... right. I just kind of sat still on the edge of one of the golf carts, and tried really hard not to have to go blow on the ball. Sometimes it feels like a little piece of my brain goes missing, or it drains out, and I have to get it back.
Holly tried to get it from him.
"Seriously, brah! I need that football!" she told him.
But, Holly, some other girls and I had been tackling him for the football and running away with it, so he didn't trust us. Eventually, one of the other girls gave him his hat back, which he was bargaining to trade the ball for, so he tossed Holly the ball. I blew really hard on it and threw it into the lake. This happened a few times, and then he intentionally poked me in the head even after we told him that he couldn't touch my head. I tried really hard not to get mad.
He doesn't understand, Emma. He doesn't understand. But, when someone tells you not to do something, you shouldn't do it. They might blog about it.(;
"He's trying to be funny," Holly whispered to me.
I rolled my eyes, which I seem to do a lot. He was failing miserably at being cute and funny. It was all a joke to him.
"Hey, can I have your finger real quick?" I asked without thinking.
We all giggled and I just mumbled, "Uh, never mind."
But, Holly eventually grabbed his wrist, which was balled up in a fist, so all I blew on was his knuckles, not the fingertip that touched me. Whatever. I tried hard not to do it anyways.
The party was still fun though, and had really good food. The night ended well, with Holly and I falling asleep on the couches in her garage loft.

I know. I know that you don't know. I get it. I get it that you don't get it. I understand. I understand that you don't understand.

Yeah, well you know what they say...


Life's A Twitch.


Emma<3

Wednesday, August 24, 2011

The Tourettes Guy

Hello There.


I'm sure many of you have heard of the "Tourettes Guy".
He even has his own website and everything.
He makes videos with an incorrect portrayal of Tourette Syndrome, and posts them on YouTube and his website.
Other people re-post his videos and write things in the movie captions.
For instance, YouTube user Tidus067 posted "The best of tourettes guy part 2"
The caption he put for the video was "a guy with tourettes, IF YOU HAVE TOURETTES OR ARE OFFENDED BY THIS VIDEO DONT MESSAGE ME ABOUT IT AND DONT WATCH IT THEN? Part one removed by youtube... i no longer have the videos sorry"
Well then, douchebag, if you know you are going to offend people, don't post the damn video. If you want people to watch it, don't tell us not to.
There are so many imbuciles in this world.
In the Tourettes Guy videos, it just shows him using random cuss words in his sentences while talking, like "Pass me the ****ing salt!" or even pointing to a photo and saying, "Who's that ***?"
I really hate how many views the videos get. Tidus067's video got a whole 5,098,300 views. dannyj86's re-posted video, "Tourettes Guy, Best Of" has 20,435,127 views! It's ridiculous and it makes me sick.
The Tourettes Guy's username is EaglesFan98TG.
That man makes me sick.
He even had the audacity to put his YouTube channel in TSA colors.
Or maybe he didn't even know that teal represented TS. Probably not, because he's so stupid.
I don't care if he sees this blog. Go ahead, you can even show it to him for all I care. He makes very offensive videos, and I'd even say all of this to his face.
I even e-mailed the TSA about the Tourettes Guy, even though they probably already know about him since he's so famous, but the TSA never e-mailed me back.
I'm done ranting.
Teen angst...


Emma<3

Tuesday, August 16, 2011

Rawr!

Hey Yinz,

So, yesterday I went to Cougar Camp. Yes, I know how that sounds... but it's not a camp to learn how to score younger men. It's my highschool camp! Our mascot is a cougar. No, I don't mean Missy G... but the animal. It wasn't really an orientation. Different people go at different days and times according to their last names, so I was with Samantha Patrick at the time we went, which was 12:15pm. Then, it turns out they break you into even smaller groups, and we got separated. But a little before it started, we talked talked to *Maria (*Name changed!).
So, while talking to "Maria", I bent down, which is one of my tics. It kind of looks like I'm ducking. That, or as many people say, I'm "dropping it like it's hot". I kind of like that phrase better. Maria just gave me one of those huge smiles and said, "What was that?!"
I am so used to this, but it's still annoying. I'm always really nice about it though, and shake it off.
Alright Maria, it's not like I just popped my eyes out, then put them back in. I just squatted.
"Oh, I have Tourettes," I replied, unphased.
"Oh my gosh! You could so use that to your advantage!" she exclaimed.
Oh dear Lord in Heaven.
But Maria just continued, "You could really use that to your advantage! You could totally go around slapping people like 'Oh, sorry, Tourettes!' and never get in trouble!"
Now, why in Hell would I do that?
And she continued some more, "Like, you should so do that! You couldn't get in any trouble 'cause like you have Tourettes!"
She was even displaying the movements, showing me how I should slap people, and she was laughing, but she was the only one. Sam and I really didn't think it was funny.
So I responded, "Oh, well that's not really what Tourettes is."
"But still, you could totally use that to your advantage!" Maria grinned.
I know she didn't mean it in a negative way, like "Carl" or "Jack" had, but I was still unhappy with what she said.
When Maria went to talk to someone else, Sam and I just looked at eachother.
Sam told me, "Whoa. I would never say that to someone. I can't believe she just said that!"
I replied, "Welcome to my life. Everytime I go to a new school, this is what happens. People don't understand, and I get made fun of for it."
I understand that Maria was just clueless about it, but she should have recognized I was feeling uncomfortable, and stopped. My Tourettes is no excuse for slapping people in the hallways, because the tics don't just come automatically and happen all of a sudden. I would be a pretty messy eater if that was true... But, you get this feeling, and if you don't do the tic, the feeling gets worse. I can't really explain the feeling, but if you don't have TS, be glad. I know that a lot of people out there have worse problems, and I totally acknowledge that. I'm just saying TS is very unpleasant.
But if you really want to feel that feeling, overdose on dopamine. Badooomp Schhh!!
Yeah, that was a drum noise at the end...
And I am aware the joke is corny, because I'm pretty sure no person in their right mind wants Tourettes.
Dopamine is produced in the basil ganglia, which is in the middle of your brain, and overproduction of this chemical is one of the causes of Tourette Syndrome.
Oh yeah, that's right. Rising ninth grader knows her science! That's why I got placed in Honors.(;
Anyways, I shook it off and went throughout the day, only to find that apparently a lot of my teachers are terrible. In the former students' opinions, pretty much all of my teachers the upperclassmen either had no idea who they were, or the majority choice: they didn't like the teachers. At all.
Except for one. But, I have to wait until second semester to get her...
So, exciting stuff, touring some of the school, watching a cool video, and playing team building games like Huggy Bears. GREAT.
I had an okay time there, and I slept over at my friend Megan's house afterwards.

High School... Ready or not, here I come.

Now, to go watch some Syfy!(:

Thank you for reading.

Emma<3

Friday, August 5, 2011

The Angry Family

Hey Everyone!

Today I did a play at Raleigh Little Theater during my camp and the parents came to see. My fellow campers and I wrote a play called "The Angry Family" and performed it.
I must say though, there is one guy there where it was hard for me to even look at him.
No, I'm not saying he's so friggin' ugly I can't bare to even be in his presence.
He had a tic.
A tic that I have.
That's why I could barely look at him.
I don't think he had Tourettes. Just a tic, or maybe even a chronic tic disorder.
But putting two people who have TS- or in this case one who has TS and one who has a tic, can end disastrously.
When I see someone doing a tic I have, or even just a repetitive movement, I have to do it. It's so annoying, and this dude had this eye tic that I also have. We scrunch up our eyes and blink and stuff. Whenever I looked at him it kind of made me angry inside, not because I hated him, but because I couldn't bare seeing him tic. He was a nice guy, but I just couldn't look at him.
Awkward when you have to work in a group with him...
Anyways...
The play went pretty well. I was LeRoi, the family hobo.
It was extremely fun!

Thank you for reading my blog.(:

Emma<3

Thursday, August 4, 2011

Guys These Days

Hey Yinz,

Yes, I was born in the Burgh. Pittsburgh, that is.(:

During the eighth grade, I rode the bus with these total jerks, and I'm so nice that I'll change their names while talking about them, even though they deserve to be publicly humiliated. I'm about to go to highschool, where they will probably ride my bus again... Oh Lord.

So, "Carl" and "Jack" are total idiots.

At school, we were doing these things called Multi-Genre projects, where we picked one thesis about a specific topic and wrote different pieces about it answering the thesis question. So, to make friendly conversation, I asked Carl and Jack what their topic was, and they said theirs were both on the KKK. So I told them I did mine on Tourettes and they just laughed and laughed and totally made fun of it. This was not the first time they had been completely rude to me, but on some small occasions they would actually be decent, so that's why I was actually talking to them. Jack had been going to school with me since Kindergarten, and should have known that I had Tourettes since my elementary school guidance counsler would come speak to the kids each year, but no. This insensitive tool, who probably did remember I had TS, and didn't care, went on making fun. They started cussing insanely and loudly acting like they had Tourettes, and I told them to stop, and that they were immitating Coprolalia, which was an uncommon form of Tourettes. Carl kept saying, "You don't have Tourettes, you don't have Tourettes!"
Do you know how many times people have told me that? Well, yes I do, dumbass, I know myself. I live in my own body, thank you very much. I know what goes on, and I'm. not. kidding.
Anyways they kept saying things like, "Could **** I go to the ******* bathroom, please ****?" and just inserting swear words into normal everyday sentences. It really ticked me off, so I ignored them for the rest of the bus ride since they wouldn't stop.
Eventually near the end of the bus ride, Carl said, "You really have Tourettes?:
No duh, jackass, I've only been saying that for the past twenty minutes.
So I replied, "Yes, I do, duh!"
He apoligized insincerely and we got off at our stop.
But life goes on.

Oh the tools you'll meet in this life.

Emma

Monday, July 25, 2011

TSA

This website is a great place to go for extra information about Tourette's!

tsa-usa.org


Life's A Twitch

Hey everyone!

I just started this blog today. July 25, 2011. My name is Emma and I am 13 years old. I have Tourette Syndrome and I know how hard it can be to live with it. This blog isn't just for people who have Tourette's to be able to relate to me, but for people who probably don't understand Tourette's. Tourette syndrome is a neurological tic disorder characterized by often occuring vocal and motor tics.

I hope you all enjoy this blog! I will be posting descriptions of my days, etc.

Also, check this out! http://www.tsa-usa.org/Publications/ChildrensNewsletter/darntic_fall2007.pdf

I was in the "That Darn Tic"  Newsletter, Fall 2007.

Thank you!

Emma